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Patient-Reported Outcomes Measurement Information System
The Patient-Reported Outcomes Measurement Information System (PROMIS) provides clinicians and researchers access to reliable, valid, and flexible measures of health status that assess physical, mental, and social well–being from the patient perspective. PROMIS measures are standardized, allowing for assessment of many patient-reported outcome domains—including pain, fatigue, emotional distress, physical functioning and social role participation—based on common metrics that allow for comparisons across domains, across chronic diseases, and with the general population. Further, PROMIS tools allow for computer adaptive testing, efficiently achieving precise measurement of health status domains with few items. There are PROMIS measures for both adults and children. PROMIS was established in 2004 with funding from the National Institutes of Health (NIH) as one of the initiatives of the NIH Roadmap for Medical Research.
The NIH established the Roadmap for Medical Research in 2004 to identify major opportunities for medical research and the development of new scientific expertise and technology that would lead to tangible benefits for patients. One of the programs within the Roadmap, Re-engineering the Clinical Research Enterprise, called for developing rigorous and systematic infrastructure for clinical research and for translating scientific discoveries into practical applications or tools that can be used by healthcare providers. PROMIS is one initiative within this program. The PROMIS initiative develops and evaluates standard measures for key patient-reported health indicators and symptoms. Patient-reported measures such as pain, fatigue, emotional distress, and physical functioning complement clinical measures (e.g., x-rays and lab tests) by providing healthcare providers with information about what patients are able to do and how they feel.
PROMIS has worked to unify the field of patient-reported outcome (PRO) measurement through the promotion of a common, systematic measurement system broadly applicable across clinical research. PROMIS measures are intended to assess the most common or salient dimensions of patient–relevant outcomes for the widest possible range of chronic disorders and diseases, thus they are "generic" measures vs. specific to given disease or condition. Structured as a multi-institutional collaboration with NIH, PROMIS has advanced the consensus process within the field of PRO measurement through the involvement of the funded research collaborative in establishing a rigorous, systematic infrastructure for measure development and psychometric evaluation.
PROMIS takes advantage of developments in technology, as well as advances in the sciences of psychometric, qualitative, cognitive, and health survey research, to create new models and methods for collecting PROs for use in clinical research and evaluation of medical care. PROMIS incorporates and translates cutting-edge science into practical, easy to use tools for clinicians: For example, PROMIS implements Computer Adaptive Test (CAT) software which tailors the PRO assessment to the individual patient by selecting the most informative set of questions based on responses to previous questions. CAT questionnaires allow an accurate measurement of health status using the fewest possible questions.
In November 2012, the PROMIS network held it first international strategy meeting with organizational partners from 8 European countries, China and Canada to develop a strategic action plan for the international spread of PROMIS.
In early 2013, PROMIS unveiled new materials to expand its outreach to researchers and clinicians: the PROMIS e-newsletter and two instructional videos series about PROMIS and Item Response Theory.
In 2016, an updated PROMIS website at www.HealthMeasures.net was created to provide more information about measure selection, data collection tools, score calculation, score interpretation, item response theory, and support an online forum for posting questions to the PROMIS user community.
The PROMIS initiative is fulfilled by a network of primary research sites and coordinating centers that collaborate to develop the items and tools to measure PROs, and to evaluate the reliability and validity of these measures. Between 2004 and 2009, PROMIS consisted of a Statistical Coordinating Center, located at Evanston Northwestern Healthcare, and six research sites located at Duke University, University of North Carolina at Chapel Hill, University of Pittsburgh, Stanford University, Stony Brook University, and University of Washington. In 2010, NIH renewed funding for PROMIS and expanded the program to six additional research sites: Children's Hospital of Philadelphia; Boston University / University of Michigan, Ann Arbor; University of California, Los Angeles; Georgetown University; Children's Hospital Medical Center, Cincinnati; and University of Maryland, Baltimore. PROMIS also added a Network Center, operated by the American Institutes for Research, Washington DC as well as a Statistical Center and a Technology Center, both operated by Northwestern University. These centers provided logistical and technical support to PROMIS.
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Patient-Reported Outcomes Measurement Information System AI simulator
(@Patient-Reported Outcomes Measurement Information System_simulator)
Patient-Reported Outcomes Measurement Information System
The Patient-Reported Outcomes Measurement Information System (PROMIS) provides clinicians and researchers access to reliable, valid, and flexible measures of health status that assess physical, mental, and social well–being from the patient perspective. PROMIS measures are standardized, allowing for assessment of many patient-reported outcome domains—including pain, fatigue, emotional distress, physical functioning and social role participation—based on common metrics that allow for comparisons across domains, across chronic diseases, and with the general population. Further, PROMIS tools allow for computer adaptive testing, efficiently achieving precise measurement of health status domains with few items. There are PROMIS measures for both adults and children. PROMIS was established in 2004 with funding from the National Institutes of Health (NIH) as one of the initiatives of the NIH Roadmap for Medical Research.
The NIH established the Roadmap for Medical Research in 2004 to identify major opportunities for medical research and the development of new scientific expertise and technology that would lead to tangible benefits for patients. One of the programs within the Roadmap, Re-engineering the Clinical Research Enterprise, called for developing rigorous and systematic infrastructure for clinical research and for translating scientific discoveries into practical applications or tools that can be used by healthcare providers. PROMIS is one initiative within this program. The PROMIS initiative develops and evaluates standard measures for key patient-reported health indicators and symptoms. Patient-reported measures such as pain, fatigue, emotional distress, and physical functioning complement clinical measures (e.g., x-rays and lab tests) by providing healthcare providers with information about what patients are able to do and how they feel.
PROMIS has worked to unify the field of patient-reported outcome (PRO) measurement through the promotion of a common, systematic measurement system broadly applicable across clinical research. PROMIS measures are intended to assess the most common or salient dimensions of patient–relevant outcomes for the widest possible range of chronic disorders and diseases, thus they are "generic" measures vs. specific to given disease or condition. Structured as a multi-institutional collaboration with NIH, PROMIS has advanced the consensus process within the field of PRO measurement through the involvement of the funded research collaborative in establishing a rigorous, systematic infrastructure for measure development and psychometric evaluation.
PROMIS takes advantage of developments in technology, as well as advances in the sciences of psychometric, qualitative, cognitive, and health survey research, to create new models and methods for collecting PROs for use in clinical research and evaluation of medical care. PROMIS incorporates and translates cutting-edge science into practical, easy to use tools for clinicians: For example, PROMIS implements Computer Adaptive Test (CAT) software which tailors the PRO assessment to the individual patient by selecting the most informative set of questions based on responses to previous questions. CAT questionnaires allow an accurate measurement of health status using the fewest possible questions.
In November 2012, the PROMIS network held it first international strategy meeting with organizational partners from 8 European countries, China and Canada to develop a strategic action plan for the international spread of PROMIS.
In early 2013, PROMIS unveiled new materials to expand its outreach to researchers and clinicians: the PROMIS e-newsletter and two instructional videos series about PROMIS and Item Response Theory.
In 2016, an updated PROMIS website at www.HealthMeasures.net was created to provide more information about measure selection, data collection tools, score calculation, score interpretation, item response theory, and support an online forum for posting questions to the PROMIS user community.
The PROMIS initiative is fulfilled by a network of primary research sites and coordinating centers that collaborate to develop the items and tools to measure PROs, and to evaluate the reliability and validity of these measures. Between 2004 and 2009, PROMIS consisted of a Statistical Coordinating Center, located at Evanston Northwestern Healthcare, and six research sites located at Duke University, University of North Carolina at Chapel Hill, University of Pittsburgh, Stanford University, Stony Brook University, and University of Washington. In 2010, NIH renewed funding for PROMIS and expanded the program to six additional research sites: Children's Hospital of Philadelphia; Boston University / University of Michigan, Ann Arbor; University of California, Los Angeles; Georgetown University; Children's Hospital Medical Center, Cincinnati; and University of Maryland, Baltimore. PROMIS also added a Network Center, operated by the American Institutes for Research, Washington DC as well as a Statistical Center and a Technology Center, both operated by Northwestern University. These centers provided logistical and technical support to PROMIS.