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Encephalitis International

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Encephalitis International

Encephalitis International (formerly the Encephalitis Society) is a not-for-profit organisation providing information and support for those affected by encephalitis, an inflammation of the brain, raising awareness and funding and collaborating on research on the condition.

The organisation provides support and opportunities to connect for individuals and families whose lives have been impacted by encephalitis. It funds, collaborates, and promotes research into all aspects of this condition. It also raises awareness of encephalitis among the public and medical and health professionals.

The chief executive is Dr Ava Easton who is also a researcher (Honorary Fellow in the Department of Clinical Infection, Microbiology and Immunology, University of Liverpool) and global expert on encephalitis patient outcomes and quality of life.

Encephalitis International provides support and information to people affected by encephalitis directly or indirectly, raises awareness of encephalitis, and drives research into the neurological condition by working with a variety of professionals and organisations from health, social care, and education globally.

The Support Service at Encephalitis International provides support and information via telephone helpline, email, online chat on their website, and Zoom sessions on request. The charity holds virtual webinars and support groups, as well as face-to-face events, weekends for children and their families, and adult retreats. It also developed a global volunteer scheme called Team Encephalitis. It provides a language line on request for its worldwide audience.

Encephalitis International has a resource library on paper and online, and provides information in digital formats: e-learning, animations and videos (e.g., Youtube). In 2019 there were 20,157 downloads of information from the website, and enquiries increased by 50% from 49.5 million people across 189 countries through WED.

During the COVID-19 Pandemic, Encephalitis International introduced more online support initiatives, including an Encephalitis Support Forum, Virtual Gatherings and The Encephalitis Podcast.

Encephalitis International funds and collaborates on research into encephalitis and its consequences. It holds an international annual conference for professionals on the condition.

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