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Group home
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A group home, congregate living facility, care home (the latter especially in British English and Australian English), adult family home, etc., is a structured and supervised residence model that provides assisted living as well as medical care for those with complex health needs. Traditionally, the model has been used for children or young people who cannot live with their families or afford their own homes, people with chronic disabilities who may be adults or seniors, or people with dementia and related aged illnesses. Typically, there are no more than six residents, and there is at least one trained caregiver there 24 hours a day.[1] In some early "model programs", a house manager, night manager, weekend activity coordinator, and four part-time skill teachers were reported.[2] Originally, the term group home referred to homes of 8 to 16 individuals, which was a state-mandated size during deinstitutionalization.[3] Residential nursing facilities, also included in this article, may be as large as 100 individuals in 2015, which is no longer the case in fields such as intellectual and developmental disabilities.[4] Depending on the severity of the condition requiring one to need to live in a group home, some clients are able to attend day programs and most clients are able to live normal lifestyles.
Facilities
[edit]Because group homes are usually ordinary suburban houses, often tract housing, modified for handicap access and care, the bathrooms in homes are typically shared. In bigger houses, there is typically a group therapy room.
The group homes highlighted in news articles in the late 1970s and 1980s,[5] and by the late 2000s, have been cited internationally as a symbol or emblem of the community movement. Group homes were opened in local communities, often with site selection hearings, by state government and non-profit organizations including the international in a broader array, spectrum, continuum, or services systems plan for residential community services or Long-Term Services and Supports (LTSS).
Another context in which the expression "group home" is used is referring to residential child care communities and similar organizations, providing residential services as part of the foster care system. There is a considerable variety of different models, sizes and kinds of organizations caring for children and youth who cannot stay with their birth families. Residents of group homes are responsible for their own conduct and are bound by an agreement to follow an expected list of house rules. Any disorderly conduct by group home residents, including fighting with other residents, damaging group home property, or another resident's personal property, or an inability to follow house rules or follow instructions from group home staff members can lead to a resident being kicked out of the group home.[6]
Types and models
[edit]A group home in a local community is what the government and universities term a "small group home". Group homes always have trained personnel, and administration located both for the home and outside the home at office locations. Larger homes often are termed residential facilities, as are campuses with homes located throughout a campus structure.
K.C. Lakin of the University of Minnesota, a deinstitutionalization researcher, has indicated that a taxonomy of residential facilities for individuals with intellectual disabilities includes program model, size and operator, and facilities also then vary by disability and age, among other primary characteristics. Prior residential facility classifications were described by Scheerenberger until the modern day classification by David Braddock on a state-by-state basis which includes individuals in residential settings of six or fewer, one categorical group.[7][8] In 2014, models of residential services in intellectual disabilities include new categories of supported living, personal assistance services, individual and family support, and supported employment.
Residents and services
[edit]Residents of group homes usually have a disability, such as autism, intellectual disability, chronic or long-term mental/psychiatric disorder, or physical or multiple disabilities because those are the non-profit and state-regional organizations which began and operated the homes. Some group homes were funded as transitional homes to prepare for independent living (in an apartment or return to family or marriage and employment), and others were viewed as permanent community homes. Society may prevent people with significant needs from living in local communities with social acceptance key to community development. The residents sometimes need continual or supported assistance in order to complete daily tasks, such as taking medication or bathing, making dinners, having conversations, making appointments, and getting to work or an adult daycare service.
Group homes were revolutionary in that they offered individuals life opportunities to learn to cook and prepare meals (e.g., individuals with severe and even profound disabilities), budget their personal allowance, select photos for their room or album, meet neighbors and "carry out civic duties", go grocery shopping, eat in restaurants, make emergency calls or inquiries, and exercise regularly.[9][10][11][12][13]
Some residents may also have behavioral problems that require a better daily routine, medical assessment for possible health care needs (e.g., pituitary problem, medication adjustment), environmental changes (e.g., different roommates), mental health counseling, specialist or physician consultation, or supervision; government may require a finding of involuntary care (i.e. dangerous to themselves or others) which is a hotly contested and disputed arena.[14] Individuals who move from psychiatric hospitals (and intellectual disability institutions) also may need medications reduced, with psychiatric symptoms often only moderately addressed ("modest efficacy") in this manner with known side effects of long-term use. The community living movement has been very successful in the United States and other countries, and is supported in 2015 by the UN Convention on the Rights of Persons with Disabilities (UN, 2006).[15][16]
Prior to the 1970s, this function was served by institutions, asylums, poorhouses, and orphanages until long-term services and supports, including group homes were developed in the United States. The primary frameworks in the United States underlying group homes are often termed social and functional competency-based (e.g., community participation, social role valorization, social and community acceptance, self-determination, functional home and community skills) and another, positive behavioral supports (which may be considered overly structured for homes and home life). Positive behavioral supports were developed, in part, to assist with "management problems" of the residential facilities.[17] Group home residents may be found in workplaces, day services, parks and recreation programs, schools, shopping centers, travel locations, and with family, neighbors, community workers, co-workers, schoolmates and friends.
In addition, new laws required that schools serve disabled children (often obfuscated as "special needs" or "exceptional children") adapting school and afterschool programs to meet the needs of the previously excluded population groups.[18] Douglas Biklen in his award-winning "Regular Lives" highlighted 3 schools in Syracuse, New York integrating severely disabled children in conjunction with his new book, Achieving the Complete School: Strategies for Effective Mainstreaming.[19]
Residential treatment facilities
[edit]People who live in a group home offering support services may be developmentally disabled, recovering from alcohol or drug addiction (e.g., who may have attended a youth drug court hosted by the judicial system), abused or neglected youths, youths with behavioral or emotional problems, and/or youths with criminal records (e.g., a person in need of supervision). Group homes or group facilities may also provide residential treatment for youth for a time-limited period, and then involve return of the youth to the family environment.[20] Similarly, drug, addictions and alcohol programs may be time-limited, and involve residential treatment (e.g., Afrocentric model for 24 women and children, as part of Boston Consortium of Services).[21]
Residential treatment for children with mental health needs
[edit]Residential treatment centers and other organized mental health care for children with emotional needs, among our highest health and human service efforts, was reported at 440 organizations nationally in 1988, representing 9% of mental health organizations.[22] Residential treatment centers were considered largely inappropriate for many of the children who needed better community support services.[23][24] Restructuring of these systems was proposed to promote better prevention and family support for children in mental health systems [25] similar to international initiatives in "individualized family support program".[26] Residential treatment is one part of an array of community services which include therapeutic foster care, family support, case management, crisis-emergency services, outpatient and day services, and home-based services.[27] During this period, residential treatment was also compared to supported housing, also called supportive housing for its role in comprehensive service system developments, though often for adults who may need or desire services.[28]
Community resources and neighborhoods
[edit]Group homes have a good community image, and were developed in the intellectual disability and mental health fields as a desirable middle class option located in good neighborhoods after a faulty start in poorer neighborhoods in the United States. Group homes were often built in accordance with principle of normalization (people with disabilities), to blend into neighborhoods, to have access to shopping, banks, and transportation, and sometimes, universal access and design.[29][30] Group homes may be part of residential services "models" offered by a service provider together with apartment programs, and other types of "followalong" services.[31] However, in 2015, the homes and personnel continue to meet the challenges of a changing multicultural society, and changing and norms in areas such as gender expectations.[32]
Halfway houses and intermediate care facilities
[edit]A group home differs from a halfway house, the latter which is one of the most common terms describing community living opportunities in mental health in the 1970s' medical and psychiatric literatures. Specialized halfway houses, as halfway between the institution and a regular home, may serve individuals with addictions or who may now be convicted of crimes, though very uncommon in the 1970s. Residents are usually encouraged or required to take an active role in the maintenance of the household, such as performing chores or helping to manage a budget. In 1984, New York's state office in intellectual and developmental disabilities described its service provision in 338 group homes serving 3,249 individuals.[33] Some of these homes were certified as intermediate care facilities (ICF-MRs) and must respond to stricter facility-based standards.
Residents may have their own room or share rooms, and share facilities such as laundry, bathroom, kitchen, and common living areas. The opening of group homes in neighborhoods is occasionally opposed by residents due to ableist fears that it will lead to a rise in crime and/or a drop in property values.[34] However, repeated reviews since the 1970s indicate such views are unfounded, and the homes contribute to the neighborhoods. In the late 1970s, local hearings were conducted in states such as New York, and parents of children with disabilities (e.g., Josephine Scro in the Syracuse Post Standard on June 7, 1979), research experts, agency directors (e.g., Guy Caruso of the Onondaga County Arc, now at Temple University) and community-disability planners (late Bernice Schultz, county planner) spoke with community members to respond to their inquiries. The late Josephine Scro later became a director of a new family support agency in Syracuse, New York, to assist other families with children with disabilities with family supports in their own homes and local communities, too.[35][36]
Foster care and family support for children
[edit]A group home can also refer to family homes in which children and youth of the foster care system are placed, sometimes until foster families are found for them, sometimes for long-term care.[37][38] Homes which are termed group foster care operate under other standards than those termed group homes, including different management systems and departments.
Unrelated children or sibling groups live in a home-like setting with either a set of house parents or a rotating staff of trained caregivers. Specialized therapeutic or treatment group homes are available to meet the needs of children with emotional, intellectual, physical, medical and/or behavioral difficulties.[39]
Group homes for children provide an alternative to traditional foster care, though family support to the birth, adoptive, and foster families are often first recommended.[40] Several sources state that, in comparison to other placement alternatives, this form of care is the most restrictive for youth in the foster care system.[41] The term group home is often confused with lock-down treatment centers, which are required to have eyes-on every so often due to behavioral and intellectual disabilities of the children and youth they serve. There are also less restrictive forms of group homes, which often use the house parent model. Those organizations are due to their visual comparability to several foster families within a certain area as well as their connectedness to each other, the community and internally best described as residential child care communities.
Group homes and foster homes have been compared and studied in national samples.[42][43][44][45] Group homes were studied as part of a national sample of community living for individuals with severe disabilities, and small group homes six or under were among the recommended options, often for adults.[46]
Supportive community options for adults with disabilities
[edit]Newer options of group living were often termed supported living, supported housing, individual and family supports, or early on, "individualized supportive living arrangements" (e.g., apartment programs).[47][48][49][50][51] These developments often followed analyses of homes as homes,[52] ordinary housing and support services, versus group treatment or facilities, an important critique during the 1980s and 1990s reform period. Independent living continued to be a primary framework representing another emblem of community living more often associated with personal assistance and live-in attendants, home health services, and the now termed allied health services of physical and occupational therapy, speech, cognitive therapy, and psychological counseling.[53] However, leading psychiatric survivors examined independent living in the context of supportive housing and necessary support services which did not need to be congregated in housing.[54]
Group options for seniors with disabilities
[edit]Perhaps the largest group of group homes (now termed community residential services or residential care by other managements) fall under the heading of residential care homes for seniors, or both seniors and individuals with disabilities. Residential care categories include over 43 separate regulated categories by state governments and now have the new assisted living growing in the United States. Group (e.g., funded as large as 100 individuals in a nursing facility or on old-style campus of over 12 wards on the outskirts of cities) or homes for seniors (e.g., room and board) are designed for seniors who cannot live on their own due to physical or mental disabilities.[55] Group facilities, which may involve over half of the allotted beds or more (80%) funded by Medicaid, might also be found under Residential Care Home, Residential Care Facility for the Elderly, or Assisted Living Facility. Alternative community options for these seniors are home health care, hospice care, specialized care (e.g., Alzheimer's), day care at senior centers, meals on wheels, transportation drivers, and other aging and disability options.[56]
Civil rights
[edit]In most countries, people can still vote in election and attend higher education while in a group home. However, Internet usage in group homes may be severely limited (if not prohibited outright). Trips to public libraries may vary depending on the distance from the group home to the library. While 93% of the Canadian population has easy access to a public library,[57] it is uncertain about the percentage of Canadian group home residents who actually have unrestricted access to a public library in lieu of watching television.
Employment and the Americans with Disabilities Act
[edit]Employment opportunities, where available, are encouraged for group home residents, depending on the home, operator, and characteristics of the residents. Since the 1970s, people with cognitive or mental health disabilities have been involved in community employment of all kinds and also have developed freestanding affirmative industries and supported employment services in conjunction with the government.[58] These rights are protected under the Americans with Disabilities Act of 1990, later revised in 2008.[59] Human rights laws, still operational in states, govern employment applications for employment, and the employer is restricted from asking pre-employment questions on criminal arrests or discriminating on this basis (See, Human Rights Laws of the state of New York). However, unbeknownst to many communities and organizations, management rights, instead of human rights, have been inserted in contracts in the United States.[60]
Mental health and civil rights
[edit]In the United States, it has been the position of state mental health commissioners that many people who are living independently should be placed in intensive treatment, as described in a mid-1980s article in the Community Mental Health Journal. The authors held that only 12 of 3,068 individuals should be living independently (p. 199) based on their model predictions.[61] In contrast, the continuum model has been critiqued as restrictive of rights, facility-based, and restrictive of community participation [62] resulting in a US Supreme Court decision recognizing the most integrated setting (Consortium of Citizens with Disabilities, 2012).[failed verification]
Increasingly, concern has been voiced over the rise in community treatment orders, medical homes, invasive supervision in homes, in addition to decades of outcry over involuntary procedures in psychiatry in the United States and restrictions on human rights. In this field, no viable recourse exists for reversing actions by personnel, including professional and medical malpractice, and the most successful programs are viewed as those that result in high compliance.[63] High medication usage is required, often against the law, and the situation worsens during any police-enforced confinement. Group homes in the non-profit sector are often operated by other than the providers involved in state or private, for-profit involuntary care.
Nursing facility industry
[edit]The nursing facility industry holds the position, often with its affiliated hospitals, that it decides on involuntary treatment of elders, which involves issues such as visitations. Nursing homes have had a very long history of reviews and complaints including to the federal level of the Government Accountability Office (GAO) in the United States and have been the subject of major reform efforts. Today, a Red Cross ombudsman may be available in the homes, special needs units may be available to assist in areas such as bathing and eating, and in some cities, short term rehabilitation is provided for seniors at those sites instead of at community locations. Nursing facilities, unlike the small size standard of the Centers for Disease Control (CDC) for homes for individuals with intellectual disabilities, may have over 100 "institutional clients" on site and is reporting 2–3% restraint use.
Education and training
[edit]Group home personnel are considered in 2015 to be Direct Support Professionals [64] though paramount in this approach are maintaining a home atmosphere, routines, and community life. An abundance of literature in the 1980s and 1990s described the training needs of personnel,[65][66][67][68] and today new expectations continue to occur as the homes become increasingly health care financed and more self-direction options become available.[69]
Cultural and professional helping skills
[edit]Foundational in all helping professions are what are called "critical skill domains", which are congruent with a community support approach (e.g., values clarification, general fluency and flexibility of thought, perception and response, competence in academic content, verbal communications) (Cole & Lacefield, 1978).[70][71] In addition, with the multicultural workforce, cultural awareness, even skills like using chopsticks, are desired in the adaptive skill domains [72] and comparisons between fast food and sit down restaurants.[73]
Community volunteers and participation
[edit]By the 1990s, greater emphasis was placed on community participation and belonging, in addition to welcoming support of the community and community members.[74] In fact, several national research centers in the United States were funded, in part, on the basis of community research studies in community participation [75][76]
Special population groups
[edit]Education also occurs for special population groups or particular issues or needs; an example are the challenges gay men face in living with chronic illness [77] including HIV-AIDS which may be addressed in supported housing options. Attention is also paid to developing residential services which meet the preferences of persons with serious mental illness and their families.[78]
Independent living and brain/head injury services
[edit]Education and training in independent living from long-term care institutions (e.g., acute care facilities, long-term rehabilitation facilities, skilled nursing or intermediate care facilities, community re-entry facilities) often involved changing from forced dependency to controlling and deciding one's own destiny called self-determination. Life skills ranged from health and hygiene, parenting/child care, home maintenance, money management, activities of daily living, community awareness and mobility, legal awareness, social/interpersonal skills, and family involvement (Condeluci, Cooperman, & Self, 1987).[79] These services may be called post-acute services, and involve other personnel models, such as life coaches (Jones, Patrick, Evans, & Wuff, 1991).[80] Independent living training has also proved effective in addressing the needs and expectations of individuals who have sensory impairments (e.g., hearing or blindness).[81]
Cost of residential services
[edit]Residential services costs have been studied in depth in areas that relate to group homes, family care homes or community residential services, especially on deinstitutionalization, Medicaid home and community-based waiver development, and community development.[82][83][84] Residential treatment, often provided in larger facilities, may be higher in reimbursement rates to the provider so treatment billings will be found for higher-cost professional services (e.g., behavioral health). Surprisingly, except for very small sizes, the larger, medicalized facilities bill the highest costs per individual (e.g., intermediate care facilities over 16 in the state of New York).[85]
Individual and family costs of services
[edit]In relationship to the individual or family, residential services are expensive for low or middle-class families, and federal, state and local government often contribute to these costs. Medicaid-funded options may require use of assets, and Social Security Disability or Social Security are also part of payment plans. New options called family-directed and user-directed involve transfer of funds to homes and families, and continue to be in process in states. Early organizations provided information on their management and financing to help local communities replicate or begin their own homes and programs.[86]
Residential care, assisted living, supported housing
[edit]Residential care homes, run by the government or by the for-profit and non-profit industries, need not be low cost and/or low quality as many might initially guess, though traditional room and boards may be based primarily on a Social Security Disability payment and limited governmental personnel assistance. More expensive residential care homes now exist to offer a family-style, high quality, care option to the next class of senior care which is Assisted Living Facilities. These homes, operated often by the nursing care industry, are based on increasing need for assistance and decreasing independence. Unlike the proposals for upgraded community services in homes and communities for seniors with substantial needs, assisted living was primarily developed as facility types only; supported housing also was a new model as state initiatives.[87]
Seniors, disability and aging
[edit]There are various levels of residential care homes for seniors, which is the traditional medical system of assessments, which differs from developing person-centered plans and support services for persons who may have substantial health care needs[88] and also from new managed Medicaid care plans. In addition, in some fields, the plan is for the individual to age in place in their group home setting. Personal care assistance is often associated with aging in place and independent living services; local governments have been reluctant to pay for other than limited services in the homes (one study stated up to 20 hours maximum, others 3–4 hours per week), in spite of a nationwide decades press toward our own governments. This position is similar to a governmental position to pay not for ordinary goods, but only for specialized services.
However, senior services of other kinds, including the senior centers,[89] low cost meals, transportation, Veteran's health services and independent clubs, specialized day care (e.g., day care for older adult policies in Great Britain),[90][91] local case managers, local Offices of the Aging (with Disability coordinators in some locations), and so forth are often available. Senior programs may also involve joint integration initiatives by aging and disability agencies resulting in leading programs such as social model day programs in Oneida County, New York, Rhode Island's Apartment Residence, Madison County Integration Program, and supported retirement programs in the state of Utah.[92]
Assisted living is a modernization effort (e.g., more choices or menus of services) in the nursing care fields which primarily resulted in modernization, to some extent, of the large facility (i.e., nursing homes) or campus models. Large state initiatives can be found in Linking Housing and Services for Older Adults representing response to long-term criticism of a facility-based service industry.[93] However, a recent nursing industry schema, reflecting a provider network, for levels of care states: "Assisted Living with No Assistance" (the most common use of "assisted living" involves little or no assistance, living at home with minimal amounts of home care), "Assisted Living with Assistance", and "Assisted Living - Memory Care". Memory care is for those dealing with memory loss, dementia, or Alzheimer's disease.[94]
However, the call nationwide is for caregiving services in the homes where aging parents often move to live with their adult children and their families. The provider sector desired are those that respect the wishes of the individual and the family, including for care at home through hospice. The New Politics of Old Age Policy (Robert Hudson, 2005/2010) calls for the government entertaining care credits or generous minimum benefits to assist United States families to juggle paid and unpaid work in today's modernized world.[95] In addition, as parents age, adults with disabilities who may be living at home will also need assistance that might not have been needed earlier (e.g., siblings, new home).
See also
[edit]- Assisted living
- Child and family services
- Child and Youth Care (CYC)
- Community integration
- Community-based care
- Cottage homes
- Family support
- Foster care (see also Foster care in the United States)
- Halfway house
- Independent living
- Kinship care
- Orphanage
- Residential care
- Residential child care community, also known as a children's home
- Residential treatment center (RTC), also known as rehab
- Supported housing
- Supported living
- Teaching-family model (TFM)
- Wraparound (childcare)
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Group home
View on GrokipediaDefinition and Purpose
Core Characteristics
Group homes are small-scale, community-integrated residential facilities that house typically 4 to 6 unrelated adults with intellectual or developmental disabilities, providing a normalized living environment as an alternative to larger institutional settings.[15] These residences are situated in standard neighborhoods, often within single-family homes, to facilitate social integration and reduce stigma associated with segregated care.[16] Residents generally have private bedrooms for personal autonomy, while sharing communal spaces such as kitchens, dining areas, and living rooms to promote interpersonal interaction and shared responsibilities akin to family households.[17] Staffing in group homes operates on a 24-hour basis, delivering non-medical support including assistance with activities of daily living (e.g., meal preparation, personal hygiene, and household chores), medication oversight, and behavioral interventions tailored to individual needs.[18] Unlike nursing homes or hospitals, group homes emphasize skill development for greater independence rather than comprehensive medical treatment, with staff-to-resident ratios often ranging from 1:3 during waking hours to overnight supervision without constant presence.[19] Capacity is strictly limited—commonly capped at 6 to 8 residents per state regulations—to maintain a home-like scale and prevent overcrowding that could mimic institutional dynamics.[20] Licensing and oversight by state agencies ensure compliance with standards for safety, hygiene, and resident rights, including individualized service plans that prioritize community participation, vocational training, and family involvement.[21] Core operational principles focus on person-centered care, where supports are customized to foster self-determination and reduce reliance on institutional models, though variability exists across jurisdictions in staffing qualifications and program intensity.[1] Funding typically derives from government programs like Medicaid waivers, which reimburse for community-based services over costlier congregate care.[22]Philosophical and Policy Foundations
The philosophical foundations of group homes rest on the normalization principle, articulated by Wolf Wolfensberger in the 1970s, which posits that individuals with intellectual disabilities should participate in culturally normative patterns of daily life to enhance their quality of life and social integration, rather than isolation in large institutions.[23] This principle, originating from Scandinavian welfare models, advocates for small-scale, community-embedded residences like group homes to mimic typical family or neighborhood living, thereby reducing stigma and fostering independence through ordinary routines, relationships, and activities.[24] Normalization challenges the paternalistic institutional model by emphasizing causal links between environmental typicality and psychological well-being, supported by early empirical observations that deinstitutionalized individuals exhibited improved adaptive behaviors and social competencies compared to segregated cohorts.[25] Policy foundations derive from civil rights frameworks prioritizing the least restrictive environment, codified in U.S. legislation such as the Americans with Disabilities Act (ADA) of 1990, which prohibits unnecessary segregation and mandates community-based services where feasible.[26] The 1999 Supreme Court decision in Olmstead v. L.C. reinforced this by ruling that states violate the ADA's integration mandate when they institutionalize individuals with disabilities who could receive care in community settings, provided treatment professionals deem it appropriate and resources permit without fundamental alterations to state services.[27] This policy shift, driven by evidence from longitudinal studies showing community living yields higher satisfaction, personal safety, and participation rates—such as greater time spent with non-disabled peers and reduced behavioral incidents—than institutionalization, has guided federal funding toward group homes as cost-effective alternatives, with deinstitutionalization reducing institutional populations from over 200,000 in 1967 to under 30,000 by 2019.[28][29] Critically, these foundations assume adequate community supports to realize normalization's causal benefits, yet implementation gaps—evident in some post-deinstitutionalization cases of inadequate oversight leading to isolation or unmet needs—underscore that policy efficacy hinges on empirical validation rather than ideological fiat alone, with meta-analyses of over 5,000 transitions confirming net gains in daily living skills but highlighting variability by support intensity.[25][30]Historical Development
Early Models and Pre-Deinstitutionalization
Prior to the mid-20th century deinstitutionalization movement, residential care for individuals with intellectual disabilities and mental health conditions predominantly relied on large-scale, custodial institutions that emerged in the 19th century as alternatives to earlier poorhouses and almshouses. These facilities, such as the New York State Asylum for Idiots established in 1851 and similar state schools, housed growing numbers of residents—reaching about 80 public and private institutions in the United States by 1923—often in isolated rural settings with a focus on segregation rather than community integration.[31] Conditions in these early institutions varied but frequently emphasized containment over treatment, reflecting societal views of disability as a moral or custodial burden.[32] One notable precursor to modern community-based models was the family foster care system in Geel, Belgium, which originated in the 13th century around the shrine of St. Dymphna and evolved into a structured program by the 19th century where local families boarded individuals with mental illnesses in their homes, providing small-scale, integrated living arrangements supervised by church and later state authorities. This approach, documented as early as the 1500s and continuing into the 20th century, demonstrated that dispersed, family-like residences could manage severe mental disorders without institutional isolation, influencing later normalization principles though it remained exceptional rather than widespread.[33][34] In the United States and Europe during the pre-deinstitutionalization era (roughly 1800–1950), smaller-scale options like boarding homes or extramural family placements existed sporadically, particularly for less severe cases, but were limited by inadequate funding and oversight; by 1947, only 15 state hospital systems had initiated home care or outpatient extensions as adjuncts to institutional care. Almshouses from the colonial period through the early 19th century served as de facto group residences, mixing disabled individuals with paupers and the elderly in overcrowded, unregulated settings that prioritized cost-saving over specialized support.[35][32] These models laid rudimentary groundwork for later group homes by highlighting the failures of mass institutionalization—such as abuse and neglect—but lacked the intentional community focus that characterized post-1950s developments.[36]Deinstitutionalization Era (1950s-1980s)
Deinstitutionalization in the United States gained momentum in the mid-1950s, driven by the introduction of chlorpromazine (Thorazine), the first effective antipsychotic medication, which enabled the management of psychiatric symptoms outside large hospitals.[37] This pharmacological advance, combined with exposés revealing overcrowding and abuse in state institutions, shifted policy toward community-based care, including the development of smaller residential options like group homes.[38] By the early 1960s, the civil rights era's emphasis on integration influenced reformers to advocate for normalizing environments for those with mental illnesses and intellectual disabilities, reducing reliance on isolated asylums.[38] The Community Mental Health Centers Construction Act of 1963, signed by President John F. Kennedy, marked a pivotal federal commitment, allocating funds for building local centers to provide outpatient services and prevent long-term institutionalization.[38] This legislation envisioned a network of community facilities, including group homes, to support discharged patients, with the goal of treating severe mental illness in less restrictive settings.[39] However, implementation faltered due to insufficient funding and planning, leading many former inpatients to group homes that often lacked adequate therapeutic support.[38] High-profile scandals accelerated closures; the 1972 exposé of Willowbrook State School on Staten Island revealed severe neglect and abuse among over 5,000 residents with intellectual disabilities in a facility designed for 4,000, prompting a 1975 consent decree mandating deinstitutionalization and transition to community group homes.[40][41] Willowbrook closed in 1987, with most residents moved to group homes by 1992, influencing national policy toward smaller, community-integrated residences.[42] Empirical outcomes were mixed: state psychiatric hospital populations declined from approximately 559,000 in 1955 to 132,000 by 1980, but community services underdelivered, resulting in transinstitutionalization to nursing homes, jails, and streets rather than true integration via group homes.[43] Studies attribute 4-7% of incarceration growth from 1980-2000 to reduced psychiatric beds without commensurate community alternatives, highlighting causal failures in funding and oversight.[44] While group homes offered some residents greater autonomy, systemic gaps often perpetuated vulnerability, as evidenced by rising homelessness among the severely mentally ill.[38]Modern Expansion and Reforms (1990s-Present)
The expansion of group homes in the United States during the 1990s and early 2000s continued the deinstitutionalization trend, transitioning individuals from large psychiatric hospitals and developmental centers to smaller community residences. In the Washington, D.C. metropolitan area, the number of residents in group homes rose from 3,735 in 1991 to nearly 8,000 by 2001, reflecting broader policy-driven shifts toward less restrictive environments.[45] This growth was supported by federal initiatives promoting community-based care, including expansions in Medicaid funding for home and community-based services (HCBS) waivers, which enabled states to offer residential alternatives to institutionalization.[46] The 1999 Supreme Court ruling in Olmstead v. L.C. marked a pivotal reform, holding that unjustified segregation of people with disabilities in institutions violates the Americans with Disabilities Act, thereby endorsing community integration through settings like group homes over prolonged institutional stays.[47] This decision spurred states to rebalance long-term services toward HCBS, with Medicaid expenditures on such programs growing significantly; by the 2010s, HCBS accounted for over half of Medicaid long-term support spending in many states, funding group homes alongside other options.[48] However, implementation varied, as states grappled with waiting lists for HCBS waivers that exceeded 700,000 individuals nationwide by 2024, limiting access and sustaining reliance on group homes for some populations.[49] Reforms from the 2010s onward emphasized quality assurance and reduced congregate living, driven by the 2014 Centers for Medicare & Medicaid Services HCBS Final Rule, which required settings to foster autonomy and community participation, prompting about one-quarter of states heavily dependent on group homes to cap capacities, retrofit facilities, and prioritize person-centered planning.[50] For youth in foster care or juvenile justice systems, federal policies like the Family First Prevention Services Act of 2018 restricted funding for non-family-based group placements exceeding 16 beds or lacking qualified professional treatment, aiming to minimize institutional-like environments amid evidence of poorer outcomes such as higher re-abuse rates compared to family foster care.[10] Persistent challenges include elevated costs for transitioning to individualized supported living—often 20-50% higher than group homes—and oversight gaps, with reports documenting abuse incidents and staffing shortages, particularly during the COVID-19 pandemic when group home residents faced disproportionate mortality risks due to communal settings.[46] These issues have fueled advocacy for further deinstitutionalization toward private apartments with supports, though empirical data indicate group homes remain prevalent for those with higher support needs, comprising a substantial portion of community residences for intellectual disabilities as of 2021.Types and Variations
For Intellectual and Developmental Disabilities
Group homes for individuals with intellectual and developmental disabilities (IDD) are community-integrated residential facilities typically housing 3 to 6 residents in a single-family-style setting, designed to foster independence and normalize daily living while providing necessary support services.[51] These differ from larger institutions by prioritizing smaller group sizes to enhance personal choice, skill development in activities of daily living (ADLs), and participation in local employment, education, and recreation.[52] Residents often receive individualized plans under Medicaid Home and Community-Based Services (HCBS) waivers, which fund supports like vocational training and behavioral therapies, aiming to reduce reliance on institutional care.[46] Staffing in these homes generally includes direct support professionals available 24 hours a day, with ratios varying by resident needs—such as one staff per three residents during waking hours for those with moderate IDD—and training focused on crisis intervention, medication administration, and promoting self-advocacy.[53] Services extend beyond basic supervision to include community outings, meal preparation assistance, and family involvement, with the goal of transitioning residents toward more autonomous living arrangements like supported apartments when feasible.[54] In the United States, as of 2020, about 15% of non-family-supported individuals with IDD resided in such group homes with 1-6 residents, reflecting a shift from institutional models, where the number of people served in non-family settings rose from 403,066 in 2000 to 551,017 in 2020.[55] [51] Empirical evaluations show community group homes generally yield better outcomes than institutional settings in areas like social networks and adaptive behaviors, with longitudinal studies linking deinstitutionalization to gains in quality-of-life indicators such as choice-making and community inclusion.[56] [29] For example, residents in smaller homes report higher frequencies of unscheduled social activities and friendships compared to those in facilities with 16 or more peers.[53] However, evidence indicates variability: group homes with 7-15 residents correlate with elevated risks of behavioral disorders and poorer health metrics, potentially due to reduced individualized attention.[57] Per-person costs in community settings often exceed those of institutions—sometimes by 20-50%—driven by higher staffing demands, though proponents argue the investments align with federal policies favoring integration over segregation.[46] Critiques highlight persistent risks, including understaffing and abuse, as documented in U.S. Department of Health and Human Services audits revealing gaps in oversight for over 100,000 residents in group homes as of 2022, with recommendations for enhanced monitoring to prevent neglect or exploitation.[58] Despite these, supported living models within or evolving from group homes—offering more autonomy—demonstrate superior long-term outcomes in independence and satisfaction over traditional congregate care.[52] Approximately 16,000 individuals with IDD remained in state-operated institutions in 2024, underscoring incomplete transitions and ongoing debates over scaling community options amid waitlists exceeding 200,000 for HCBS services.[59] [60]For Mental Health Conditions
Group homes for mental health conditions provide residential support for adults with serious mental illnesses, such as schizophrenia, bipolar disorder, and severe depression, in community-based settings typically housing 4 to 12 residents.[61] These facilities emerged as alternatives to long-term psychiatric hospitalization, emphasizing supervised independence through on-site staff assistance with daily living, medication adherence, and access to therapy.[62] Unlike institutional care, residents often share common areas while maintaining private bedrooms, with services tailored to foster skill-building for eventual transition to less restrictive housing.[63] Operational models vary, including supervised apartments where staff visit periodically or live-in arrangements for higher needs, funded primarily through government programs like Medicaid in the United States.[64] Key services include crisis intervention, case management, and vocational training, aimed at reducing relapse and hospitalization rates.[65] Empirical studies indicate these homes achieve housing stability for most residents, with one review finding decreased inpatient days and cost savings compared to institutional models.[66] However, permanent supportive housing variants show limited impact on symptom severity or substance use, suggesting efficacy depends on integrated clinical support.[67] Challenges persist, including risks of inadequate staffing leading to neglect or abuse, as highlighted in oversight reports on group homes generally.[58] Community integration can falter due to stigma or resident conflicts, and some analyses reveal higher odds of mood or psychotic disorders in small group settings versus independent living with outreach.[57] Compared to pre-deinstitutionalization asylums, group homes correlate with better quality of life and reduced institutionalization, though former long-stay patients often require ongoing supervision to avoid homelessness.[68] [69] Long-term outcomes underscore the need for individualized matching, as congregate living may exacerbate isolation for some while providing necessary structure for others.[70]For Youth in Foster Care or Justice Systems
Group homes serve as residential placements for youth in the foster care system who exhibit severe behavioral challenges, trauma histories, or other needs that render traditional family foster care placements unstable or unsafe. These facilities typically house 6 to 12 adolescents, often aged 12 to 18, providing structured environments with on-site staff supervision, therapy, and life skills training as an alternative to institutionalization or repeated foster home disruptions.[3] In the United States, such placements represent a subset of congregate care, which accounted for approximately 10-14% of out-of-home foster care arrangements in recent years, though exact figures for group homes specifically vary by state and are concentrated among older youth unable to secure family-based options.[71] Placement in group homes is often viewed as a transitional or last-resort measure, prioritizing stability for youth with histories of aggression, substance involvement, or failed prior placements.[13] For youth involved in the juvenile justice system, group homes—sometimes termed therapeutic or community-based residential facilities—aim to address delinquency through rehabilitative programming, including counseling, education, and behavioral interventions, as an alternative to detention centers. These programs emerged post-deinstitutionalization reforms to reduce reliance on secure facilities, emphasizing reintegration into communities.[72] However, empirical studies indicate mixed short-term benefits, such as improved in-placement behavior, but elevated long-term risks; for instance, adolescents with at least one group home placement face a relative delinquency risk 2.5 times higher than those in family foster care.[3][9] Recidivism rates post-release remain a concern, with limited evidence of sustained reductions in offending compared to community-based family interventions.[73] Comparative research consistently shows inferior long-term outcomes for youth in group homes versus family foster care across metrics like educational attainment, emotional stability, and post-care independence. Meta-analyses reveal that children in residential group care experience higher rates of school failure (e.g., mostly C grades or lower), increased likelihood of homelessness, incarceration, and substance abuse upon aging out, attributed to the congregate setting's potential to reinforce deviant peer influences and limit individualized attachment.[74][10][75] Prolonged exposure exacerbates these risks, with one study linking extended congregate stays to doubled odds of adverse adult outcomes relative to family placements.[76] While some youth achieve favorable discharges and reunifications from group homes—outpacing treatment foster care in select cases—overall evidence favors family-based care for fostering prosocial development and reducing reentry into care.[12][77] Policy shifts since the 2010s have trended toward minimizing such placements through incentives for kinship or therapeutic foster homes, reflecting data on cost inefficiencies (group homes averaging $100,000+ annually per youth) and suboptimal causal pathways to self-sufficiency.[11]For Substance Abuse Recovery and Seniors
Group homes for substance abuse recovery, commonly known as sober living houses or recovery residences, provide alcohol- and drug-free communal living environments for individuals post-treatment, emphasizing peer support, house rules promoting abstinence, and connections to outpatient services.[78] [79] These facilities typically house 6 to 15 residents in a single-family home setting, requiring participation in recovery activities like 12-step programs without on-site clinical treatment.[80] Empirical studies demonstrate that residents experience significant reductions in substance use, with one analysis showing improved alcohol and drug abstinence rates alongside gains in employment and decreased arrests over 12 months.[81] [82] Affiliation with larger recovery networks correlates with better outcomes, including longer sobriety and lower relapse risks, though individual factors like prior treatment engagement influence success.[83] [84] For seniors, group homes—often structured as adult family homes or small residential care facilities—offer shared housing for 2 to 6 elderly residents needing personal care, supervision, or assistance with activities of daily living, but not skilled nursing.[85] These settings prioritize a home-like atmosphere to foster autonomy, with operators providing meals, medication management, and light housekeeping tailored to age-related needs or mild disabilities.[16] In the U.S., such arrangements serve a subset of the approximately 1.2 million older adults in broader assisted living, but smaller group models like family-type homes target those preferring intimate, non-institutional care to avoid larger facilities.[86] About 15% of older adults receiving formal help reside in supportive residential settings, where group homes contribute by enabling community integration and reducing isolation, though data specific to small-group formats remain limited compared to institutional alternatives.[87] Outcomes include sustained independence for residents with moderate needs, with lifetime risks indicating 48% of those reaching age 65 eventually require some paid residential support.[88] Variations exist by state regulation, with emphasis on operator certification to ensure safety without over-medicalization.[85]Operational Framework
Staffing, Training, and Daily Management
Staffing in group homes primarily consists of direct support professionals (DSPs) who handle round-the-clock supervision and assistance for residents with intellectual or developmental disabilities, mental health conditions, or other needs. Unlike nursing homes, which face a federal minimum of 3.48 total nurse staffing hours per resident day finalized in 2024, group homes lack uniform national ratios and are governed by state regulations tailored to resident acuity. Typical daytime ratios range from 1:3 to 1:6 staff-to-residents, with adjustments for higher-needs individuals, as seen in Illinois guidelines assuming 1:3 for facilities where most residents remain home during the day. Nighttime staffing is often reduced to 1 staff per home. High annual turnover among DSPs, averaging 43.3% across U.S. states in 2021 and 39.7% in 2023, stems from low wages, demanding shifts, and burnout, contributing to care inconsistencies.[89][90][91][92] Qualifications for DSPs are minimal, generally requiring only a high school diploma, a clean criminal background check, and valid driver's license, with no college degree mandated for entry-level roles. States may prefer prior experience in caregiving or human services, but empirical data show many enter with limited preparation, exacerbating turnover and skill gaps. Managers or supervisors often hold associate or bachelor's degrees in social work or related fields, overseeing DSP teams.[93][94] Training standards vary by state but emphasize initial orientation covering resident rights, crisis intervention, medication assistance, and disability-specific needs, often totaling 40 hours or more before independent shifts. Ongoing annual training, such as 6-20 hours on mental health or positive behavior support, is required in many jurisdictions like Ohio and Alabama. Peer-reviewed studies demonstrate that behavioral training programs, including classroom instruction and in-home feedback, increase positive staff-resident interactions by up to 50% and reduce coercive practices, though implementation fidelity remains inconsistent due to resource constraints.[95][96][97][98] Daily management revolves around individualized service plans, with DSPs coordinating activities of daily living (ADLs) like meal preparation, hygiene, and mobility support to foster resident autonomy. Routines typically include structured mornings for personal care, daytime community outings or vocational activities, evening leisure, and overnight monitoring, with 24/7 shift rotations ensuring coverage. Staff document incidents, administer medications under protocols, and address behaviors via de-escalation techniques, though high turnover disrupts continuity and elevates risks of unmet needs. Empirical evaluations link stable staffing to better ADL outcomes, underscoring causal ties between understaffing and reduced independence.[99][100][101]Services Provided and Resident Autonomy
Group homes offer a range of supportive services tailored to residents' needs, including 24-hour supervision, assistance with activities of daily living such as bathing, dressing, meal preparation, and medication administration.[102] These facilities also provide habilitation services to develop life skills, housekeeping, personal care, and sometimes educational or vocational support to promote functional independence.[103] In settings for adults with developmental disabilities, services emphasize protective oversight while encouraging community integration through transportation and recreational activities.[104] Resident autonomy in group homes is structured around person-centered planning, where individuals participate in decisions about their daily routines, care plans, and goals, aiming to balance support with self-determination.[105] However, empirical research highlights constraints on this autonomy; for example, staff practices in intellectual disability group homes often involve directive power dynamics during daily tasks, limiting resident choice despite formal policies promoting self-determination.[106] Studies in similar residential settings indicate that autonomy levels correlate with staff training in supportive interactions and facility design that facilitates independent access to spaces and resources.[107] In practice, residents typically retain control over personal preferences like leisure activities and social contacts, but require oversight for health and safety, resulting in graduated independence rather than full self-governance.[108]Regulation and Quality Control Measures
Group homes in the United States are subject to licensing and regulation primarily at the state level, with oversight typically managed by departments of health, human services, or developmental disabilities. States mandate licenses for operators, requiring compliance with standards for physical facilities, fire safety, sanitation, and accessibility to ensure resident safety and suitability for vulnerable populations such as those with intellectual disabilities or mental health conditions. For example, in Ohio, adult group homes provide accommodations to 6 to 16 unrelated adults.[109] For instance, in Illinois, group homes must adhere to Rules 403, which specify operational protocols including approval for resident travel exceeding 48 hours and facility authorization limits.[110] Federal involvement is limited but includes protections under the Fair Housing Act against discriminatory zoning and requirements for Medicaid-funded homes to meet Home and Community-Based Services (HCBS) criteria, emphasizing community integration over institutional settings.[1][111] Quality control measures encompass regular inspections, incident reporting, and performance monitoring, though enforcement varies significantly by state and has been criticized for inconsistencies. State agencies conduct periodic surveys—often annually or biennially—to verify compliance with staffing ratios, training requirements, medication management, and abuse prevention protocols; for example, New York State's Department of Health inspects adult care facilities, including group homes, every 12 to 18 months.[112] The U.S. Department of Health and Human Services Office of Inspector General (HHS-OIG) has highlighted systemic gaps, such as states failing to report up to 99% of critical incidents like abuse or neglect in group homes, undermining federal oversight of Medicaid providers.[58][113] To address these, a 2018 joint HHS report recommended states implement holistic strategies including mandatory incident tracking, staff background checks, and resident grievance mechanisms to enhance health and safety.[114] For homes serving individuals with intellectual and developmental disabilities (IDD), quality assurance draws from evolving performance metrics under Medicaid HCBS waivers, focusing on outcomes like resident autonomy, health stability, and community participation rather than process compliance alone.[115] The Centers for Medicare & Medicaid Services (CMS) endorses HCBS measure sets that include domains such as care coordination, provider communication, and specific clinical issues, with states required to report data for federal funding eligibility.[111][116] Accreditation by bodies like the Council on Quality and Leadership provides additional voluntary benchmarks, emphasizing evidence-based standards amid the expansion of Medicaid managed care into IDD services.[117] Despite these frameworks, empirical evaluations reveal persistent challenges, including underreporting and variable state capacity, prompting calls for standardized federal metrics to mitigate risks of substandard care.[58][115]Empirical Outcomes and Evaluations
Evidence of Positive Impacts
Studies on community-based group homes for individuals with intellectual and developmental disabilities (IDD) indicate improvements in quality of life following deinstitutionalization. A 2024 longitudinal study of 90 participants transitioning from institutions to community settings, compared to 72 who remained institutionalized, found significant enhancements in overall quality of life after nine months, with large to very large effect sizes across domains including independence, health, and social integration; these benefits extended to those with high support needs, contingent on effective daily supports and decision-making opportunities. Smaller group homes (2-3 residents) have been associated with protective health effects, such as reduced odds of cardiovascular disease (odds ratio 0.38) and other mental disorders (odds ratio 0.53), based on post-2020 National Core Indicators data for IDD populations.[29][57] For those with mental health conditions, supportive housing models, which often incorporate group home elements with on-site services, demonstrate high housing retention rates and health gains. Research syntheses report that at least 75% of homeless individuals with severe mental illness maintain stable housing for 18-24 months in such programs, with over 50% sustaining it for up to five years; associated benefits include reduced substance use among veterans and improved immune system integrity (63% higher survival likelihood) for those with comorbid HIV. A New York evaluation of permanent supportive housing placements showed statistically significant reductions in psychiatric hospitalizations and emergency department visits, alongside enhanced housing stability.[68][68] In substance abuse recovery contexts, sober living group homes correlate with measurable recoveries in key metrics. A study of residents in such facilities documented sustained reductions in alcohol and drug use, alongside gains in employment rates, decreased arrests, and better psychiatric functioning during and post-residency.[81] For youth in foster care, evidence of positives is more circumscribed, primarily showing short-term behavioral improvements. Therapeutic group homes yield rapid, significant progress in problem behaviors during initial months of placement, though long-term outcomes lag behind family-based care.[118][3] Group homes for seniors, often structured as small residential care facilities, offer advantages in care delivery and well-being. These settings provide higher staff-to-resident ratios enabling individualized attention, a homelike environment fostering comfort, and lower costs relative to nursing homes; recent analyses link senior housing participation to decreased injury vulnerability, increased in-home healthcare access, and overall health improvements compared to independent living.[119][120]Documented Failures and Risks
Group homes have been associated with elevated rates of abuse and neglect compared to family-based care settings. A peer-reviewed study found that children in residential care, including group homes, were six times more likely to be assessed by pediatricians for abuse than children in the general population.[121] Similarly, research indicates higher maltreatment rates in congregate care facilities like group homes than in foster family homes.[122] For individuals with intellectual and developmental disabilities, victimization by caregivers exceeds 59%, encompassing physical abuse, verbal abuse, and neglect, with those in residential settings facing particular risk relative to home-based arrangements.[123] In state-supervised systems, underreporting exacerbates these risks. U.S. Department of Health and Human Services Office of Inspector General audits revealed that up to 99% of critical incidents—such as serious injuries requiring emergency room visits—in group homes for developmentally disabled adults went unreported to required authorities.[58] In Missouri, from 2017 to 2023, state care for 15,000 developmentally disabled individuals (many in group homes) recorded 2,682 deaths (averaging one per day), alongside 1,858 reports of verbal, physical, or sexual abuse; investigations substantiated neglect in cases like the 2020 suffocation death of Ronald Scheer via improper wheelchair restraint and the 2019 choking death of Lisa Goodman on uneaten food left unattended.[124] Mortality risks appear heightened in group homes versus family care. During the COVID-19 pandemic, adults with intellectual and developmental disabilities in New York group homes experienced case rates of 7,841 per 100,000—substantially above state averages—and elevated fatality rates compared to community or family settings.[125] Nationally, such individuals diagnosed with COVID-19 were 2.6 times more likely to die than those without disabilities, with congregate living contributing to transmission vulnerabilities.[126] Financial mismanagement compounds operational failures, diverting resources from resident care. In Los Angeles County, auditors documented over $11 million in taxpayer funds misspent by foster group home operators on personal items like cigarettes and perfume between 2000 and 2010; subsequent cases included embezzlement of over $100,000 at Moore’s Cottage in 2015 and thousands at Little People’s World, leading to guilty pleas.[127] Systemic understaffing and inadequate oversight, as highlighted in OIG reviews, further enable neglect, with recommendations for stricter Medicaid funding penalties unmet in many jurisdictions.[128]Comparative Data Against Institutions and Family Care
Studies comparing group homes to large-scale institutions, such as psychiatric hospitals or developmental centers, indicate that residents in group homes often experience greater community integration and autonomy. For individuals with intellectual disabilities, group home residents reported higher access to support services and assistance in arranging external aid compared to those in institutional settings.[53] Deinstitutionalization efforts transitioning patients from hospitals to community-based group homes have correlated with reduced hospital populations and improved quality of life metrics, including social participation, in cases with adequate community support.[129] However, outcomes vary by condition severity; for severe mental illnesses, incomplete community infrastructure has led to higher rates of homelessness and incarceration among former institutional residents compared to sustained institutional care.[38]| Outcome Metric | Group Homes | Institutions |
|---|---|---|
| Community Integration | Higher reported participation in daily activities and social networks[130] | Lower due to isolation and regimented environments |
| Cost per Resident (Annual Average, U.S. Data) | $50,000–$100,000, depending on state and services[46] | $200,000+, driven by overhead and scale[131] |
| Health Outcomes | Improved mental health stability with proper staffing; risks of neglect if under-resourced[132] | Better medical oversight but higher infection rates and dependency |
